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Acting normal with CVI
01:57

Acting normal with CVI

At 26, Dagbjört learns she's blind since birth. With CVI, she navigates diagnosis & dream to be a music therapist, facing human rights obstacles. Dagbjört’s dream of becoming an opera singer and music therapist is challenged by an educational system that fails to support her vision impairment. Through her parents’ unwavering support, Dagbjört perseveres. But with their sudden passing, she’s left devastated. It’s only through her love of music that Dagbjört finds her purpose, ultimately finishing her opera studies and dreams about studying music therapy. Dagbjört's life-changing diagnosis of CVI at age 26 revealed a truth that was hidden for her whole life; she had been blind since birth and no one had directed it. The diagnosis came far too late, leaving Dagbjört with a lifetime of trauma and barriers to overcome. As Dagbjört nears the completion of her music degree, she knows she isn’t able to read sheet music, but isn’t sure how to communicate the struggles to the educational system. Alongside her friend Elín, she goes on a journey to Scotland, where they meet Dr. Gordon Dutton, a world- renowned expert in CVI, in hopes of finding a solution. Dagbjört's meeting with Dr. Dutton provides a crucial turning point. Through his examinations, Dagbjört discovers new insights into her CVI and learns about all the types of it that she never knew she had. Armed with a new understanding of her condition and practical tools, she returns home, better equipped to navigate her daily life. Moreover, Dr. Dutton's diagnosis underscores the injustice of Dagbjört's struggle to finish her degree. She is made aware that denying her right to be exempt from sheet music-based courses is a violation of her human rights. Empowered by this new knowledge, Dagbjört is prepared to face the barriers in her path with renewed determination. Fueled by her own struggles, Dagbjört, along with Elín embarks on a mission to end the discrimination faced by those with CVI and other disabilities. Having overcome unimaginable obstacles, Dagbjört is no longer willing to let society's limited views define her or others like her. But the question remains: will society listen to their call for change?
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